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	<title>DUNCAN CROSS &#187; laws</title>
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		<title>What does Crohn&#8217;s feel like?</title>
		<link>http://duncancross.net/2009/12/what-does-crohns-feel-like/</link>
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		<pubDate>Thu, 31 Dec 2009 14:23:11 +0000</pubDate>
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		<guid isPermaLink="false">http://duncancross.net/?p=2576</guid>
		<description><![CDATA[It feels like an alien is about to pop out of your guts. You think I&#8217;m exaggerating? You have no idea. Before I get to that, I want to clear my tabs in this last post of the year. First, you should read Bob Herbert&#8217;s op-ed about the Senate&#8217;s plan to fund health care by [...]]]></description>
			<content:encoded><![CDATA[<p><img class="alignleft size-full wp-image-2578" title="alien1" src="http://duncancross.net/wp-content/uploads/2009/12/alien1.jpg" alt="alien1" width="265" height="185" /> It feels like an alien is about to pop out of your guts. You think I&#8217;m exaggerating? You have no idea.</p>
<p>Before I get to that, I want to clear my tabs in this last post of the year. First, you should <a href="http://www.nytimes.com/2009/12/29/opinion/29herbert.html?_r=2&amp;ref=opinion">read Bob Herbert&#8217;s op-ed</a> about the Senate&#8217;s plan to fund health care by taxing &#8220;Cadillac&#8221; insurance plans. I was indifferent to this proposal, but Herbert makes a very good case for why it is wrong, and so I am now against it. We can only hope the mechanism is abandoned in the reconciliation process.</p>
<p>Next, <a href="http://www.nybooks.com/articles/23531">this article from Tony Judt</a>, about what it&#8217;s like to live with ALS is striking and moving &#8211; and especially resonates when he says, &#8220;it is hard to resist the thought that even the best-meaning and most generously thoughtful friend or relative cannot hope to understand the sense of isolation and imprisonment that this disease imposes upon its victims.&#8221; I have often thought the same of Crohn&#8217;s, and I am sure it&#8217;s true of a great many other illnesses.</p>
<p>Lastly, back to <em>Alien</em>: I happened on <a href="http://www.nytimes.com/2009/12/21/movies/21obannon.html">Dan O&#8217;Bannon&#8217;s obituary</a> in the <em>NY Times</em> over the holiday. O&#8217;Bannon wrote the screenplay for <em>Alien</em>, as well as several other horror and science fiction films. O&#8217;Bannon also had Crohn&#8217;s disease &#8211; in fact, the obit quotes him as saying, &#8220;the idead for the the monster in &#8216;Alien&#8217; originally came from a stomachache I had.&#8221; I&#8217;ve seen <em>Alien</em> a half-dozen times, and now it makes perfect sense: how I&#8217;ve wished the monster gnawing at my guts would just kill me and/or scamper away.</p>
<p>Of course, most doctors will tell you that Crohn&#8217;s is incurable but not terminal &#8211; so it&#8217;s notable that the obit states, &#8220;the cause [of death] was Crohn&#8217;s disease.&#8221; That could mean any number of things, from surgical complications to sepsis to self-assisted euthanasia &#8211; there are a lot of ways to die from Crohn&#8217;s disease. But the fact that you might identify a proximate cause of death in no way changes the underlying cause of death; so when doctors say Crohn&#8217;s isn&#8217;t terminal, what they mean is that <em>in theory </em>you could live a normal lifespan, if you can just avoid all the different ways people with Crohn&#8217;s disease die prematurely. Props to whomever named Mr. O&#8217;Bannon&#8217;s cause of death for what it was.</p>
<p>Sad though Mr. O&#8217;Bannon&#8217;s passing is, I am at least grateful I can finally claim a movie for my disease. People with AIDS have <em>Philadelphia</em>, and people with ALD have <a href="http://www.imdb.com/title/tt0104756/plotsummary"><em>Lorenzo&#8217;s Oil</em></a> &#8211; but those of us with Crohn&#8217;s? We have frickin&#8217; <strong><em>Alien</em></strong> &#8211; and that&#8217;s a pretty badass movie to have.</p>
<p>That&#8217;s it for 2009. See you in the new year.</p>
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