Regular readers will note that my blogging has been slow lately. I’ve been busy offline, and meanwhile I’ve thought about refocusing this blog. Here’s what came from that process:
-I am now a member of Change.org’s Universal Healthcare blogging team, which means I’ll be doing all of my reform, politics, and policy posting over there. Change.org [...]
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Fri, March 12 2010 » Uncategorized » 2 Comments
If you are sick and need (or want) to fly, it is a daunting prospect – the scrutiny, the crowds, the discomfort. What used to be a relatively benign experience has become – even for the healthiest traveler – one gigantic hassle after another. But for many trips, there’s really no other way to get [...]
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Thu, March 11 2010 » Uncategorized » 1 Comment
I am late and short on this – I wish my real-world life were more conducive to my blogging – but here is the 19th edition of Patients for a Moment.
You’ll recall that the question asked where you would be without your illness. I had ample time to think about this over the past week; [...]
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Wed, March 10 2010 » Uncategorized » 5 Comments
I am hosting next week’s edition of Patients for a Moment. My question is somewhat related to Leslie’s from the last edition:
Who would you be without your illness?
There’s a lot of emphasis in our community about staying positive, looking towards the future, optimism, et cetera – all of which has merit. But too much deliberate [...]
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Wed, March 3 2010 » Uncategorized » 2 Comments
I’ve just added Chapters 6 – 10 to League of Mortals. In the previous chapters, Wesley got sick, lost his job, and had to produce a stool stample. In these chapters, he undergoes more testing and gets a new job: helping take care of a guy named Travis, who is terminally ill. If you are [...]
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Tue, February 23 2010 » Uncategorized » No Comments
Leslie asks : What is your relationship to illness? Is there a particular time when you wish illness wasn’t in the picture? Or is there a time when you find it’s easy to forget about illness?
My relationship to my illness has been almost entirely bad, like Ike and Tina bad – and I’m not Ike. [...]
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Fri, February 19 2010 » Uncategorized » 3 Comments
One of the goals in my theme update/upgrade has been to provide an easier means for me to publish League of Mortals. Unfortunately, WordPress does not make it easy to provide non-bloggy content, but I think I finally cobbled together an acceptable workaround.
I have published the first five chapters in this new format, so you [...]
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Thu, February 11 2010 » Uncategorized » No Comments
The current edition (forget which number) is up at Oh My Aches and Pains. Thanks to Selena for her excellent job as host.
If you’re interested in hosting, let me know.
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Wed, February 10 2010 » Uncategorized » No Comments
I upgraded to WordPress 2.9 today, and took the opportunity to try a new theme, too. As you can see, I still have some work to do with the buttons and the stylesheet, but everything should be functional for the time being. I’ll try to get it all cleaned up by the end of the [...]
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Mon, February 8 2010 » Uncategorized » No Comments
For her edition of Patients for a Moment, Selena asked: “What are the four letter words you use to describe your life with chronic illness?” I could fill a month’s worth of posts with just the profanities that come to mind—but who would read it?
“Suck” would be the most descriptive. “Pain” is also appropriate. “Poop”—also [...]
Tags: biog, ills, pfam
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Sun, February 7 2010 » Uncategorized » 2 Comments