Joe – I disagree; if the cause of death is ultimately due to the disease, then it seems more direct to say “died from Crohn’s”. If a person dies from an infection due to AIDS, it’s perfectly honest to say they died from AIDS. If they die from sepsis due to colon cancer, it’s perfectly honest to say they died from colon cancer. And if we tried to say otherwise, I think a lot of people would rightly suspect we were fooling ourselves.

But for some reason when people die from Crohn’s disease, the medical community feels it necessary to pretend that something else killed them, even if that something else is directly due to the disease – as if the pretense that Crohn’s can’t be life-ending is somehow helpful to those of us dealing with it. It’s not. As a matter of fact, I don’t even care all that much what the “_____” was for O’Bannon; the dude died of Crohn’s disease, and that’s all I need to know.

I am extremely impressed with your site! You are phenomenal in giving Crohn’s a VOICE! THANK YOU. I’ve lived with it for 24yrs now. I turn 30 in march. I’ve been on disability for years now, and can’t get my Crohn’s in remission.

on 9.24.09 I created a free non profit support network. It has evolved into something that is life changing. I’ve connected with and mwet so many others who are living with Crohn’s – or are a family member/friend of a patient. I was wondering if I could post a link to your site from mine? You are doing an amazing job for the Crohn’s Disease community. Please contact me at CrohnsDiseaseSN@gmail.com or CrohnsDiseaseSN on twitter.

Thanks again I look forward to reading more!!!
Jason Leitman -