Patients for a Moment #2

Wednesday, July 1 2009

Welcome to the second-ever installment of Patients for a Moment – the blog carnival for, by, and about patients. Lots of great posts this time, which I will tarnish with gratuitous commentary:

We start with a hefty dose of inspiration: Jenny at ChronicBabe writes that Everything is brand new and waiting for you… and the chance to help you feel better – a post prompted by the marvel of a friend’s baby. Incidentally, and this may not be coincidence at all, her post title almost works as a lyric to James Brown’s Get Up Offa That Thing.

Kairol at Everything Changes asks, Are You Annoying Your Doctors? Meow that’s an interesting question.

Barbara at Florence Dot Com has a post titled, Meaningful Use: Your prescription shouldn’t have to look like this – about prescription safety, and some ideas on how it can be improved. Barbara’s site is focused mostly on patient safety, and it’s a great resource for patients looking to keep themselves safe.

Laurie at A Chronic Dose posts her Musings at the One-Year Mark – a reflection on the anniversary of publication of her book, Life Disrupted. She writes about her gratitude for all that she has learned from the many patients who have contacted her since.

Aviva at  Sick Momma asks, What’s In A Name? Her post is about the disrespect some diagnoses are treated with by both medical professionals and “regular” people. I tell “regular” people I have cancer; that shuts ‘em up. Doesn’t work with medicals, though.

Dave at Daved and Infused (a great blog name, by the way) offers Lessons – a reflection on the sense of hope and optimism a brief remission can give, only to be shattered by relapse of the disease.

Reality Rounds writes Me Nurse Pretty One Day, about the story that some Czech hospitals are offering free breast implants as a perk for their nurses. RR, for some reasons, seems to think that’s a silly idea.

Rachel at Tales of My Thirties posts Action Item: Anxiety. “Living in constant fear is no way to live.  Trust me on that one.”

Lisa at Brass and Ivory writes a touching post titled Love, Intimacy, and All that Jazz. I don’t know who Rob is, but I think Lisa is lucky that she does.

Leslie at Getting Closer to Myself tries to live a full life, meanwhile butting heads with a doctor who thinks she should take it easy. Her post is titled Let’s Talk About It, Talk About It, Talk About It.

Katherine at After Cancer, Now What? offers her Reflections on a Cancer Survivor Summit. She points out that clinical trials have a bad rep, which is true. I will say, however, that I have participated in three clinical trials over the years, and they were all worth it.

Steve at Adventures of a Funky Heart sends in The Heart of a Warrior: A Funky Heart Interview – a conversation with a particularly perserverant patient.

Sara at Single Girl’s Guide to RA calls RA the Loser Disease. -Ahem- I normally don’t like to get into this sort of thing, but I might point out that RA would have to be very loserish indeed to be more of a loser disease than IBD. I’m just saying: we poo. A lot. If you want to weigh in with your loser disease, drop a comment on Sara’s blog.

And finally, since this a nice summation of why we do it like we do it, Dr. Rob at Musings of a Distractible Mind writes about Why Blogging Matters: “Blogging matters because it gives perspective that could never come from anywhere else.  Blogging is the journalistic equivalent of democracy, giving the average person a chance to make their voice heard.”

Thanks for giving me the chance to make your voice heard. I want to do this again on July 15, with a submission deadline of July 12th. I’ve been a little busy lately, so haven’t had a chance to put together a calendar, but my hope is that after July 15th this will start rotating among patient blogs. In the meantime, be well.

Tags: pfam

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