A few posts back, I pointed out that Billy Tauzin presumes to speak for patients, despite not appreciating the typical experience of patients in our health care system. I wrote that knowing Mr. Tauzin had survived a bout of cancer against long odds. My point was not that Mr. Tauzin has no experience with illness, [...]
Thu, March 26 2009 » Uncategorized » 2 Comments
One of the best things about blogging is the people that interact with me here and elsewhere in the blogosphere, and what I learn from them. For example, Joe Wright commented on my post about disease organizations, and points to a response on his own blog. You should read his post – in particular, towards [...]
Thu, March 26 2009 » Uncategorized » No Comments
I mentioned a while back that I have some problems with the research/fund-raising agenda most disease organizations pursue. I want now to be more specific: most of these organizations are not helpful, and possibly detrimental, to the lives of sick people. You know the organizations: the sort that sponsors showy fundraiser walks, always clad in [...]
Fri, March 20 2009 » Uncategorized » 28 Comments
